Personal Homepages of Affected Families

Taryn's World...And Welcome To It!
This site is all about Taryn, who was diagnosed with an MPS disease. It is a place for all "special children" to come and learn about themselves and other similar children. It is full of pictures, and has links to personal webpages of other "special children".

MITCHELL'S BONE MARROW TRANSPLANT
Royal Children's Hospital, Brisbane Australia.
Mitchell was the first Hurler Syndrome Child to have a BMT as treatment at this hospital in Brisbane. Before us, others have been done at Sydney Hospitals. Until approx. 12 mths ago, all M.U.D. Bone Marrow Transplants were done in either Adelaide or Sydney, or sent overseas.

Ethan's Feeling Switch
This page presents a simple analogy that children can understand, and introduced the concepts of what causes some disabilities without complicated words. This page is dedicated to Ethan, who was diagnosed with Hunter Syndrome (Mucopolysaccharidoses - Type II), a degenerative and terminal storage disorder, when he was four and a half years old. Please take the time to visit this beautiful site.
Holland's Hope
All three Holland children (Spencer, Madison & Laynie) are affected with Hurler Syndrome, and this page describes the condition and their progress to date, including Spencer's experience with a trial enzyme replacement therapy program. Holland's Hope is an organization founded to help the children.
Jenna Marie's Story
This page is about a young girl diagnosed with Hurler disease. Her parents have put her life story, in both words and pictures, here on this site dedicated to Jenna.
Welcome to DJ's Homepage
This page is about a young boy diagnosed with Tay-Sachs disease. DJ lives in the Chicago, IL area. His parents have included some helpful links to related Tay-Sachs pages.
Jacob's Reach
This page is about Jacob, a young boy diagnosed with Neimann-Pick Type C disease. The page contains photos and personal stories, and an updated progress report on Jacob.
Krabbes Disease Home Page
This site is devoted to CJ, who was diagnosed with Krabbes Disease at 5 months old. His parents share the story of his birth, troubles and eventual diagnosis of this extremely rare disease. Also available are two "Hints & Tips" pages with valuable advise for raising a child with this disease.
Hunter's Hope
Hunter's Hope was formed in 1997 after Hunter was diagnosed with Krabbes Disease (Globoid-Cell Leukodystrophy). Hunter's Story is linked from this page.
Judson's Helping Hand
This page is dedicated to the memory of Judson Wade Peacock, who was affected with Krabbes Disease. He underwent BMT, but passed away from complications. His parents tell his story, and have also set up a fund to help with medical costs for other children with this disease.
Michaiah Rain Reed
This page is a dedication to Michaiah's Life. She was diagnosed with Tay-Sachs disease, and her parents have created this page in memory of her. There are also some links to related Tay-Sachs sites.

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